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. 2018 Jul 31;16(1):70.
doi: 10.1186/s12961-018-0339-4.

A novel approach to sharing all available information from funded health research: the NIHR Journals Library

Affiliations

Affiliations

  • 1 National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre, University of Southampton, Alpha House, Enterprise Road, Southampton, SO16 7NS, United Kingdom. d.wright@soton.ac.uk.
  • 2 National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre, University of Southampton, Alpha House, Enterprise Road, Southampton, SO16 7NS, United Kingdom.
  • 3 Health Sciences, University of Southampton, University Road, Southampton, SO17 1BJ, United Kingdom.
  • 4 University of Exeter Medical School, St Luke's Campus, Heavitree Road, Exeter, EX1 2LU, United Kingdom.
  • 5 Institute of Psychology, Health and Society, University of Liverpool, Liverpool, L69 3BX, United Kingdom.

A novel approach to sharing all available information from funded health research: the NIHR Journals Library

David Wright et al. Health Res Policy Syst. .
. 2018 Jul 31;16(1):70.
doi: 10.1186/s12961-018-0339-4.

Affiliations

  • 1 National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre, University of Southampton, Alpha House, Enterprise Road, Southampton, SO16 7NS, United Kingdom. d.wright@soton.ac.uk.
  • 2 National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre, University of Southampton, Alpha House, Enterprise Road, Southampton, SO16 7NS, United Kingdom.
  • 3 Health Sciences, University of Southampton, University Road, Southampton, SO17 1BJ, United Kingdom.
  • 4 University of Exeter Medical School, St Luke's Campus, Heavitree Road, Exeter, EX1 2LU, United Kingdom.
  • 5 Institute of Psychology, Health and Society, University of Liverpool, Liverpool, L69 3BX, United Kingdom.

Abstract

Background: Relevant information on health research must be made publicly available in an accurate, timely and accessible manner if evidence is to inform practice and benefit patient care. Failure to publish research information represents a significant waste of research funds. However, recent studies have demonstrated that non-publication and selective or biased reporting remains a significant problem. The role of online publications in rectifying these issues by providing open access to study information is increasingly recognised.

Objective: This paper details a novel approach to publishing research information developed by the National Institute for Health Research (NIHR), a major funder of health research in the United Kingdom. The NIHR has enhanced its Journals Library ( www.journalslibrary.nihr.ac.uk ), providing an online repository of information from research funded through five programmes. We describe how the NIHR Journals Library provides a 'thread' of relevant information for each study, including protocols, participant information sheets, data linkages, final reports, publications and diverse knowledge products. We also discuss the Library as a 'living' resource, one that is updated as each study progresses from inception to completion. Finally, we consider the implications of the Library for the NIHR, other journals and research teams submitting information.

Conclusion: Openly publishing information from funded research in the NIHR Journals Library serves as a model of knowledge sharing, maximising return on investment and enhancing the usability and replicability of research findings for different evidence-user communities. The Library also supports wider 'research on research' ambitions, enabling users to interrogate the repository of NIHR-funded studies, enhancing the understanding of research commissioning, design, dissemination and impact. Video abstract: www.youtube.com/watch?v=8H03uxN_iTE .

Keywords: Evidence-based practice; Information dissemination; Publishing.

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Conflict of interest statement

Ethics approval and consent to participate

Not applicable.

Consent for publication

Not applicable.

Competing interests

EW and RM are employed by the University of Southampton to work for NETSCC. NETSCC runs the NJL for the NIHR. EW receives salary from the NIHR for her role as Director of Research Delivery and Impact at NETSCC, which includes management of the NJL. RM was employed by NETSCC during the conduct of the study and over the last 20 years has worked at various times for the NJL and its publishing predecessors. AlM, KS and TW have received fees or a proportion of their salary from the NIHR to support NJL activity. AlM is Chair of the NJL Editorial Group (Health Services and Delivery Research, Programme Grants for Applied Research and Public Health Research journals) and is an editor for the NJL. KS is Chair of the Health Technology Assessment Monograph Editorial Board and is a member of the NJL board. TW is Editor in Chief for the NJL. CB and DW have received payment from NETSCC to support the development and delivery of the relaunched NJL, and preparations of this paper.

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Figures

Fig. 1

Fig. 1

Overview of threaded, living publications…

Fig. 1

Overview of threaded, living publications provided in the NIHR Journals Library

Fig. 1
Overview of threaded, living publications provided in the NIHR Journals Library
Fig. 2

Fig. 2

Thread of information provided for…

Fig. 2

Thread of information provided for the CRASH2 trial in the NIHR Journals Library.…

Fig. 2
Thread of information provided for the CRASH2 trial in the NIHR Journals Library. The links in this figure can be seen in Additional file 1

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